Back in 1990, I had my first partial complex seizure at sleep time (I was around 12 years old), and I ignored it for long years as I figured that not sleeping in the middle of the day resolved the issue and I no longer had them.
I was diagnosed with left temporal low-grade glioma in 2009, and he was told that most likely he had those seizures. I suspect it has been around for decades, given my history. I started having nocturnal seizure-like episodes at 12 years old that went untreated. It is interesting to note that if he took an afternoon nap, it would result in a nighttime episode.
In 2005, by coincidence, I had my first brain MRI and discovered that I had what appeared to be a benign tumor on my left temporal lobe (the MRI was requested because of a left leg numbness). My neurosurgent advised me not to take any action but to continue to watch if progress is showing before taking any action. Therefore, I put things on hold until I had my first partial complex seizure in 2008. That pushed me personally to take a new action, seeking surgery elsewhere at a place where surgery was actually possible, given that my many neurosurgents in Jordan told me that it was inoperable.
Accordingly, I had my brain surgery on February 9, 2009 in Canada, at which time they resected 92% of the tumor, which was diagnosed as an Astrocytoma Grade II (later in Cleveland, UK, they said it was an oligoastrocytoma in their report, which turned out to be more correct).
(the tumor sent off for testing, which showed that MGMT methylation issues are responsive to standard of care, namely Temozolomide, which I did not take until this moment)
While the surgery was “successful”, it surely left me with brain challenges that partially improved 3 to 6 months post-surgery. However, a few months later, my symtombs worsened without tumor growth for a few years.
I wasn’t recommended to do anything except taking brain MRIs. No tests, no food choices or diets, and I used to have my high-carb diets until 2013, when one MRI showed me that some brain tumors were slightly developing, and that made me move to the nutrition world, and I have followed blood tests linked to diets that are specific to my cancer.
I had two grand mal seizures, one in 2015 while I was trying to wean off Trileptal (without referring to a doctor) and another in 2017 despite being still on Trileptal.
After my first brain surgery, sleeping was difficult because complex partial seizures were showing up when I started to sleep (which used to take place when I was a child but I ignored because back then the solution was to simply not take a 30-minute nap in the middle of the day). After years of working on healing my gut which started in 2017, this issue stopped occurring. This started with me discovering the new route of Functional Medicine, and that let me meet many fine practitioners who investigated new paths that I hadn’t been informed about before.
On November 4th, 2020, I had an COVID-19 and it was difficult on me. I had an MRI just in case, and I discovered that the brain tumor had grown again.
After discussing the MRI findings with my practitioner, she raised concerns about my use of L-Glutamine (RepairVite), which I had been taking for gastrointestinal support. Although there was no established evidence that it caused the tumor growth, I decided to discontinue it and pursue another surgical consultation.
On January 4, 2021, I had my second surgery, and the neurosurgeon made a resection removing 90% of the tumor (Learn More About Post the Brain Surgery), and that extended my memory and helped me find wording, which I will explain later here.
In September 2023, an MRI revealed further tumor growth, leading to my third brain surgery in Germany in 2024 under Professor Madjid Samii. Following this complex procedure, I continued focusing on my neurological recovery, particularly memory, word-finding, and reading difficulties. In 2026, I began exploring specialized neuropsychological rehabilitation to better understand and address these ongoing challenges.
It is worth mentioning that between 2000 and 2009, I used to do bubbly/shisha (smoking) every other day for around 2 hours.
My third brain surgery took place in Germany under Professor Madjid Samii in 2024. This was an exceptionally complex procedure, particularly because several neurosurgeons had previously considered complete tumor removal impossible.
The pathology was reported as a low-grade glioma. The surgical outcome was encouraging, although the extent of tumor removal and any remaining disease must be evaluated through postoperative MRI findings and ongoing surveillance.
(2009): First Tumor Surgery
Dr. Rolando Del Maestro performed the complex surgery. Low-grade oligoastrocytoma (low-grade mixed glioma), WHO grade II. Confirmed heterozygosity at 1p and 19q confirming an oligodendroglial component.
I have details of Anatomical pathology and surgery images.
(2016): Hernia
Laparoscopic Hernia Surgery was conducted successfully. More information (including videos) is available upon request.
(1984): Appendectomy
I had an Appendectomy. It has been completed successfully, according to my parents, and it took place in the UAE.
This is a brief list of symptoms that I am suffering from now, and these have taken place since my first brain resection until now
Since my first brain surgery in 2009, I have experienced difficulties with word-finding, learning and remembering new information, reading, and occasionally finding locations.
These challenges became more noticeable following my second surgery in January 2021. Although some improvements occurred over time, reading has remained particularly difficult.
Importantly, I can still write comfortably, while reading requires considerably more effort. This pattern may be consistent with alexia without agraphia, a form of acquired reading impairment with preserved writing ability, although formal assessment is required to confirm the diagnosis.
My significant reading difficulties began only after my third brain surgery in 2024. Reading became considerably slower and required much greater mental effort, particularly when reading unfamiliar or complex material.
Importantly, my ability to write remains relatively preserved, while reading is substantially more difficult. This pattern may be consistent with alexia without agraphia, also called pure alexia, an acquired reading impairment with preserved writing ability. However, a formal neuropsychological assessment is required to confirm the exact diagnosisSocial Cognition and Theory of Mind
Following my third brain surgery, I became increasingly aware of difficulties recognizing other people’s emotional needs, understanding their perspectives quickly and responding appropriately during real-life interactions. A neurologist who reviewed my history and MRI described this as a mild reduction in theory of mind, potentially related to disruption of circuits connecting the left temporal region with the limbic system.
He explained that this function may be improved through targeted neuropsychological rehabilitation involving emotion recognition, perspective-taking and practical real-life exercises. I have now begun working with a clinical neuropsychologist on these areas
I had two generalized tonic-clonic seizures (formerly called grand mal seizures) in 2015 and 2017. I started CBD in 2022, and it has helped a great deal, but some incidents, like getting sick or if I’m under stress, would show auras and/or manageable seizures.
I have done so many tests, all of them with the guidance of different practitioners
The MRI performed in September 2023 revealed further tumor growth, leading to my third brain surgery in Germany in 2024. Since then, MRI surveillance has remained important for monitoring my condition and assessing any changes following surgery.
Discovered in 2017 and tested three times so far. The tests are showing that Lipopolysaccharides (LPS), both IgG and IgA are still in the Equivocal range.
These findings were documented during my earlier investigations into gastrointestinal health. Any subsequent test results should be reviewed separately to determine whether these markers changed over time.
Very high readings of “Ochratoxin A”, “Gliotoxin” and “Mycophenolic Acid.” I cleaned the sources at the house, and I went through treatment for months, then did the test again on 6/2020 to find out that I still need to do more.
All the readings are green except for Alpha + Beta Tubulin IgG+IgA, where it is Out of Range. The diet and supplements are supposed to be helping with this. The focus now is on the Array 2 outcome, and once that is healed, we’ll test this one.
On July 7, 2019, this reading showed that I can’t eat eggs or cheese, nor rice or wheat. Beans and lentils are out of range too. I can’t eat macadamia (bad for keto). The rest are a few and aren’t difficult for me to follow.
Earlier in 2020, we discovered that 3 readings were in Equivocal range, while 4 were Out of Range.
Having done the GI MAP test, I discovered several issues, with H-Pylori being the most important one that is being healed.
I have met with Dr. Sandlin Lowe, MD, at Amen Clinics in New York. The outcome was astonishing, showing that both my left and right temporal lobes aren’t functioning well. I followed plenty of the discussion’s protocols, but I did not feel any positive outcome during the first year
Estradiol (E2) is low, while Sex Hormone Binding Globulin was high (for many years). I could not yet treat this, despite different supplements given to me.
That showed many readings that were higher and lower than the range. I have spoken to Dr. Robert Miller about this test and, most importantly, the neurotransmitter issues.
The treatment plan has surely been different over the years for different purposes. However, I am
I have worked with three different practitioners who specialize in CBD. After many months, I discovered that the numbers must be much higher than when I first tried. This helped very well without medications, but it is still not 100% seizure-free.
That took place and I have documented what I went through, what the vaccine was, and what tests it showed (we took a sample of the brain tumor itself in 2021)
I did 12 sessions in November 2020, then started another 12-session plan before my second brain surgery in January 2021.
The well-known diet with further restrictions. Dairy-free, butter-free, with restrictions on selected vegetables that are typically accepted in Keto. I began only 6 weeks prior to 2021 surgery.
I am currently on one month of Matula Tea and hoping to finish at the end of November 2020, although my previous treatment did significantly change the reading.
I suggest you have a look at the supplements I am taking that were used for the Pathogens
I got infected on November 5th, 2020, and the first three days were extremely difficult. After 10 days have passed, most of the symptoms have gone down, but the testing shows the case is still positive.
My breath test was positive for hydrogen sulphide. On 2012, three months later, I was healed after following a dietary protocol and set of supplements
I stopped eating poor food since 2013 as I started moving into healthier diet options, and I stopped consuming processed food and high-carb and sugar-based sources. I then switched to four different diets over the years; all are healthy, for sure, but not all of them nailed all my issues at once.
These are treatments and tools that I have tried, but they have not yet yielded positive outcomes. I am still thinking they will work at some point once I finish root causes that haven’t yet been healed.
I have met two fine doctors who spoke to me about the Erchonia XLR8 device. I tried about 30 sessions at first without any positive response.
I have researched and spoken to the best specialists in the field. I had several sessions with Dr. William Pawluk, who is “the” expert in the field of PEMF, and I ended up with two devices. I still use it often, but it has no positive impact on brain function or seizure control.
I started with Dr. Barry Sterman, and then went through many doctors with different devices. Some doctors believes that with a brain resection, it is not practical to expect anything from the Neurofeedback
These are things I haven’t yet worked on, but I may have to do that if I fail to find positive outcomes from the current plans
I already had one in Germany back in 2021, and I honestly believe that it made a difference. However, it stopped providing further benefits back in November 2023, and I may think about other vaccines if others are providing new models with better outcomes.
I have confirmed heterozygosity at 1p and 19q, and the MGMT promoter was methylated. At the right time, I wasn’t sure if I might decide to take Temozolomide at any point in time; I was always against the Chemo path for my case.
